World Sickle Cell Day Community Celebration at Brnooklyn Borough Hall
(Brooklyn, NY – June 19, 2014) The Sickle Cell Thalassemia Patients Network in partnership with Brookdale University Medical Center will host a free community forum on “The Importance of Sickle Cell Awareness in Our Community”, in the Rotunda of Brooklyn Borough Hall on Thursday, June 19, 2014, from 10:00 am to 2:00 pm.
World Sickle Cell Day, instituted by the 63rd after adopting Resolution WHA59.20, recognizing the genetically inherited blood disorder sickle cell anemia as a serious world health problem. The resolution, drafted by the Republic of the Congo Brazzaville, was co-sponsored by 26 other nations including: the African Union, Brazil, Cuba, Slovenia, and Monaco. June 19, historically known as Juneteenth (the day of emancipation from slavery) was symbolically chosen by the resolution’s sponsor to represent Sickle CellDay worldwide.
The Sickle Cell Thalassemia Patients Network (SCTPN), the oldest and largest community-based organization in New York serving individuals and families living with sickle cell disease, is a long- time partner of the Brookdale University Medical Center’s Pediatric Hematology and Sickle Cell Disease Treatment Program. Kusum Viswanathan, M.D., Chair of the Department of Pediatrics and Director of the Comprehensive Sickle Cell Program at Brookdale will be the key presenter for the World Sickle Cell Day Program.
Music Brings Life will join SCTPN to provide entertainment and coordinate a series of blood drives at Borough Hall, starting on June 19.
About the Sickle Cell Thalassemia Patients Network
The Sickle Cell Thalassemia Patients Network (SCTPN) is a 501 (c)(3) tax-exempt organization that began in 1989 at Brooklyn Jewish Hospital (now known as Interfaith Medical Center) located in Brooklyn, NY as an adult and parent support group for individuals with inherited blood disorders. SCTPN was incorporated in 1993 as a volunteer, not-for-profit organization by adults living with sickle cell disease, thalassemia and other hemoglobin disorders to serve the larger community in an effort to provide a voice for the underrepresented.
The organization provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia) and other inherited blood disorders.
For more information about SCTPN visit them online at http://www.sctpn.net.