Category Archives: EVENTS

Juneteenth – World Sickle Cell Day

Ginger Davis
GD & Associates



(New York – 13, June 2014) The Congo Mission to the United Nations made a bold move in the drafting of resolution WHA59.20 and presenting it to the Assembly of the African Union to recognize sickle cell anemia as one of the world’s most prominent genetic disorders and a serious public health concern. The African Union (AU) adopted the resolution in its 5th Session on July 5, 2005 in Sirte, Libya, then by the United Nations Educational, Scientific and Cultural Organizations on October 19 of the same year. The Congolese resolution was co-sponsored by Brazil, Cuba and Slovenia. Further support was given by Angola, Austria, Belgium, Benin, Cameroon, Cape Verde, Central African Republic, Comoros, Congo, Côte d’Ivoire, Democratic Republic of the Congo, Djibouti, France, Gabon, Ghana, Monaco, Senegal, Togo and Zambia then was presented to the General Assembly at the UN. On December 22, 2008, the 63rd  Session of the General Assembly adopted resolution A/63/.63 and passed it to the Economic and Social Committee for implementation.

The General Assembly recognizes that the homozygous form hemoglobin SS (sickle cell anemia) is the most common type of sickle cell disease worldwide and the most deadly. Education, information and communication technologies should play a crucial role in preventing sickle cell anemia and there is an urgent need to create effective research and training programs to successfully decrease the incidence of sickle cell disease in countries most affected by this debilitative and life threatening condition.

The UN General Assembly;

1. Recognizes that sickle-cell anemia is a public health problem;

2. Underlines the need to raise public awareness about sickle-cell anemia and to eliminate harmful prejudices associated with the disease;

3. Urges Member States and the organizations of the United Nations system to raise awareness of sickle-cell anemia on June 19, each year at the national and international levels;

4. Encourages Member States, as well as United Nations agencies, funds and programs, international institutions and development partners, to support health systems and primary health-care delivery, including efforts to improve the management of sickle-cell anemia; Ordinary Session of the General Assembly adopted resolution A/

5. Invites Member States, international organizations and civil society to support the efforts being made to combat sickle-cell anemia, including as part of health-system strengthening efforts, in the various development programs, and to encourage basic and applied research on the disease;

6. Urges the Member States in which sickle-cell anemia is a public health problem to establish national programs and specialized centers for the treatment of sickle-cell anemia and to facilitate access to treatment;

7. Requests the Secretary-General to bring the present resolution to the attention of all Member States and organizations of the United Nations system.

The Sickle Cell/Thalassemia Patients Network, the oldest and largest community-based charitable organization in New York in partnership with Brookdale University Medical Center, Department of Pediatrics will host a public forum for World Sickle Cell Day at Brooklyn Borough Hall in the Rotunda, from 10:00 am to 2:00 pm. Kusum Viswanathan, M.D., Chair of the Department of Pediatrics and Director of the Comprehensive Sickle Cell Program at Brookdale will be the keynote speaker. World Sickle Cell Day’s goal is to bring much needed attention to the existence of sickle cell trait, the impact of sickle cell disease, and to begin unifying the sickle cell community worldwide.

For more information visit the SCTPN website at: or call (347) 533-8485.WORLD SICLE CELL DAY FLYER


Heart Walk 2014


Sneakers on (check), water (check), family (check), and we are out the door. On Saturday, June 7, 2014, my aunt, younger cousins, uncle, my Mother (whom I’ve deemed, THE STROKE SURVIVOR), and me set out to Oak Ridge Park in Clark, NJ for the annual Heart Walk.

The Heart Walk featured so many sponsors from radio to our local pharmacy, in addition to public supporters.


From the minute we arrived, it was all about health and community. Although, heart disease and stroke are serious topics, the American Heart Association did their best to make sure we all had a good time and prepped us for the walk with some light cardio. After the group workout, they fueled us with refreshments and snacks and cheered us on our way.



In between the start of the walk and the finish line, the volunteers were very sure to keeps us hydrated and raring to go.

My Mother was very determined to be one of the first to finish. She’s in the picture below, with the big red bag.


After this harsh winter, I refuse to complain about the heat.  WOOOO, it was hot. I don’t think I’ve ever been so happy to see a finish line, as was the woman in front of me seemed to be ecstatic to see the red and white ballooned finished line.

Every year, The American Heart Association holds THE HEART WALK in an effort to raise money for public education about heart disease and stroke, two of the leading causes of death in our country. Although the Union County Association fell short of their goal to raise $140,000, they did succeed in raising $55,800.

The National Heart Association will host a additional walks around the country throughout the summer. On behalf of the Association we invite our readers to support the organization’s efforts to reduce the negative impact of heart disease and stroke by participating and helping them to achieve their overall goal. You can start by clicking the link below, to find a walk near you.

the finish